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English TBQ validation
Researchers adapted and validated an English Treatment Burden Questionnaire for chronic illness across US/UK/Canada/Australia using PatientsLikeMe.
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Study conclusion?
Adapted/validated English TBQ for USA, UK, Canada, Australia via online patient platform.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Completion numbers?
3,000 invited; 610 (20.3%) completed.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Factor result?
First factor explained 87% of variance (eigenvalue 5.91).
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Authors’ claim for the instrument?
First valid/reliable tool assessing treatment burden across multiple conditions/treatments in these settings.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Eligibility?
Age ≥18 with ≥1 condition needing ongoing care ≥6 months.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Pretest sample?
Convenience sample of 200 participants in August 2013.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Wording change example?
Replaced confusing ‘constraints’ with ‘problem’ after patient feedback.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Missing domain raised in pretest?
15 patients (7.5%) wanted more on patient–provider relationships.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Global score range?
Item scores summed into a global score from 0 to 130.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified
Recruitment platform?
Open Research Exchange on PatientsLikeMe online network.
Source: Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform · DOI · quote verified