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Dementia-carer internet support forum
Over 12 weeks on Alzheimer’s Society’s Talking Point forum, caregiving relationship quality improved but anxiety and depression scores did not.
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What intervention setting was studied?
Talking Point, the UK Alzheimer’s Society internet forum for dementia carers.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
What design was used?
Pre–post cohort over 12 weeks of forum access.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
How many completed baseline survey?
128 participants completed the first survey.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
How many provided 12-week outcomes for power?
61 participants (powered for d≈0.36).
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
Which mental-health scales were primary?
PHQ-9 (depression) and GAD-7 (anxiety), plus SQCRC relationship quality.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
Did PHQ-9/GAD-7 improve overall?
No significant pre–post difference on PHQ-9 or GAD-7.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
What did change?
SQCRC caregiving relationship-quality scores differed from baseline to 12 weeks.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
How common was non-use?
17/58 (29%) with usage data never visited the forum.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
Was heavier use linked to mood change?
Among visitors, more total time correlated with greater PHQ reduction.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
What did reliable-change analyses show?
Most participants showed no reliable individual change.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified
Who was eligible?
New adult informal carers providing substantial unpaid dementia care and fluent in English.
Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified