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Dementia-carer internet support forum

Over 12 weeks on Alzheimer’s Society’s Talking Point forum, caregiving relationship quality improved but anxiety and depression scores did not.

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What intervention setting was studied?

Talking Point, the UK Alzheimer’s Society internet forum for dementia carers.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

What design was used?

Pre–post cohort over 12 weeks of forum access.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

How many completed baseline survey?

128 participants completed the first survey.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

How many provided 12-week outcomes for power?

61 participants (powered for d≈0.36).

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

Which mental-health scales were primary?

PHQ-9 (depression) and GAD-7 (anxiety), plus SQCRC relationship quality.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

Did PHQ-9/GAD-7 improve overall?

No significant pre–post difference on PHQ-9 or GAD-7.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

What did change?

SQCRC caregiving relationship-quality scores differed from baseline to 12 weeks.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

How common was non-use?

17/58 (29%) with usage data never visited the forum.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

Was heavier use linked to mood change?

Among visitors, more total time correlated with greater PHQ reduction.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

What did reliable-change analyses show?

Most participants showed no reliable individual change.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified

Who was eligible?

New adult informal carers providing substantial unpaid dementia care and fluent in English.

Source: The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study · DOI · quote verified